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    Last Updated: 10/30/2025

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    MediFind found 52 doctor with experience in Koolen De Vries Syndrome near Royal Oak, MI. Of these, 47 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    52 providers found
      Distinguished in Koolen De Vries Syndrome
      Family Medicine
      Distinguished in Koolen De Vries Syndrome
      Family Medicine

      Michigan Healthcare Professionals PC

      2405 E 14 Mile Rd, 
      Sterling Heights, MI 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Rosenberg is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Rosenberg is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Smith-Kingsmore Syndrome, Floating-Harbor Syndrome, Aase Syndrome, and De Barsy Syndrome. Dr. Rosenberg is currently accepting new patients.

      Advanced in Koolen De Vries Syndrome
      Family Medicine
      Advanced in Koolen De Vries Syndrome
      Family Medicine
      2405 E Fourteen Mile Rd, Macomb Medical Clinic Pc, 
      Sterling Heights, MI 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Arthur Lieberman is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Lieberman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Blepharocheilodontic Syndrome, Woodhouse-Sakati Syndrome, Mckusick-Kaufman Syndrome, and Oculodentodigital Dysplasia Dominant. Dr. Lieberman is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      3535 W 13 Mile Rd Ste 707, 
      Royal Oak, MI 
       (3.0 miles away)
      Languages Spoken:
      English

      M Dekelbab is a Pediatric Endocrinologist in Royal Oak, Michigan. Dr. Dekelbab is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Growth Hormone Deficiency (GHD), Short Stature (Growth Disorders), and Familial Short Stature (FSS).

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatrics
      3535 W 13 Mile Rd Ste 707, Beaumont Pediatric Pulmonary Medicine, 
      Royal Oak, MI 
       (3.0 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Indu Jain is a Pediatrics provider in Royal Oak, Michigan. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Asthma in Children, Vocal Cord Dysfunction, Primary Ciliary Dyskinesia (PCD), and Delayed Growth. Dr. Jain is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      3535 W 13 Mile Rd, Ste. 707, 
      Royal Oak, MI 
       (3.0 miles away)
      Languages Spoken:
      English

      Peter Gerrits is a Pediatric Endocrinologist in Royal Oak, Michigan. Dr. Gerrits is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Short Stature (Growth Disorders), Type 1 Diabetes (T1D), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology | Pediatrics

      Beaumont Medical Group- Specialty Services

      3601 W 13 Mile Rd, 
      Royal Oak, MI 
       (3.0 miles away)
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients

      Rawad Obeid is a Pediatric Neurologist and a Neurologist in Royal Oak, Michigan. Dr. Obeid is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Beaumont Medical Group- Specialty Services

      3555 W 13 Mile Rd, 
      Royal Oak, MI 
       (3.1 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Campbell is a Medical Genetics specialist and a Pediatrics provider in Royal Oak, Michigan. Dr. Campbell has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Increased Head Circumference, Delayed Growth, Congenital Athymia, and Acromesomelic Dysplasia. Dr. Campbell is currently accepting new patients.

      Advanced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics
      Advanced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics

      Beaumont Medical Group- Specialty Services

      28100 Grand River Ave, 
      Farmington Hills, MI 
       (9.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Danielle Nolan is a Pediatric Neurologist and a Pediatrics provider in Farmington Hills, Michigan. Dr. Nolan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and West Syndrome. Dr. Nolan is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      Warren, MI 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Peter Francis is a Pediatrics provider in Warren, Michigan. Dr. Francis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Obesity in Children, Croup, Autism Spectrum Disorder, and Viral Gastroenteritis. Dr. Francis is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Radiology | Interventional Radiology
      Experienced in Koolen De Vries Syndrome
      Radiology | Interventional Radiology

      Spectrum Healthcare Partners, PA

      903 Wesley Dr, 
      Troy, MI 
       (8.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Faiz Francis is a Radiologist and an Interventional Radiologist in Troy, Michigan. Dr. Francis has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pleurisy, Pleural Effusion, Osteoarthritis, and Emphysema.

      Experienced in Koolen De Vries Syndrome
      Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pulmonary Medicine

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
       (9.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amanda Godfrey is a Pulmonary Medicine provider in Detroit, Michigan. Dr. Godfrey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pulmonary Actinomycosis, Actinomycosis, Lung Metastases, Stent Placement, and Gastrostomy. Dr. Godfrey is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Neurology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Neurology | Pediatrics

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
       (9.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jules Constantinou is a Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Constantinou is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Lennox-Gastaut Syndrome (LGS), and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE). Dr. Constantinou is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Beaumont Medical Group- Specialty Services

      44201 Dequindre Rd, 
      Troy, MI 
       (9.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julian Barbat is a Cardiologist in Troy, Michigan. Dr. Barbat is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Carotid Artery Disease, Arterial Embolism, Coronary Heart Disease, Angina, and Pacemaker Implantation. Dr. Barbat is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Beaumont Medical Group Hospital Based Services

      44201 Dequindre Rd, 
      Troy, MI 
       (9.3 miles away)
      Languages Spoken:
      English, Greek
      Accepting New Patients

      Kostaki Bis is a Radiologist in Troy, Michigan. Dr. Bis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lung Nodules, Visceromegaly, Non-Alcoholic Fatty Liver Disease, and Ascites. Dr. Bis is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Beaumont Medical Group Hospital Based Services

      44250 Dequindre Rd, 
      Sterling Heights, MI 
       (9.4 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Terrence Metz is a Radiologist in Sterling Heights, Michigan. Dr. Metz has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ascites, Pleurisy, Thyroid Nodule, Congenital Athymia, and Splenectomy. Dr. Metz is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Beaumont Medical Group Hospital Based Services

      44250 Dequindre Rd, 
      Sterling Heights, MI 
       (9.4 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jeremy Ross is a Radiologist in Sterling Heights, Michigan. Dr. Ross has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Subependymoma, Scoliosis, Cavernous Sinus Thrombosis, and Subarachnoid Hemorrhage. Dr. Ross is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics

      Beaumont Medical Group- Specialty Services

      28100 Grand River Ave, 
      Farmington Hills, MI 
       (9.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alexandra Shaw is a Pediatric Neurologist and a Pediatrics provider in Farmington Hills, Michigan. Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Shaw is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics

      Beaumont Medical Group- Specialty Services

      28100 Grand River Ave, 
      Farmington Hills, MI 
       (9.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Susan Youngs is a Physiatrist and a Pediatrics provider in Farmington Hills, Michigan. Dr. Youngs is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Rasmussen Encephalitis, Encephalitis, and Autism Spectrum Disorder. Dr. Youngs is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery
      Experienced in Koolen De Vries Syndrome
      Neurosurgery

      Beaumont Medical Group- Specialty Services

      28100 Grand River Ave, 
      Farmington Hills, MI 
       (9.7 miles away)
      Languages Spoken:
      English

      Cesar Serrano is a Neurosurgery provider in Farmington Hills, Michigan. Dr. Serrano is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Dandy-Walker Syndrome, Arachnoid Cysts, Increased Head Circumference, and Familial Porencephaly.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      Beaumont Medical Group- Specialty Services

      28100 Grand River Ave, 
      Farmington Hills, MI 
       (9.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Anne Michon is a Nurse Practitioner in Farmington Hills, Michigan. Ms. Michon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Gomez Lopez Hernandez Syndrome, Marcus Gunn Phenomenon, Koolen De Vries Syndrome, and Agyria Pachygyria Polymicrogyria. Ms. Michon is currently accepting new patients.

      Showing 1-20 of 52

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Royal Oak, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Royal Oak, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Royal Oak, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Royal Oak, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Royal Oak, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Royal Oak, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Royal Oak, MI?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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